DRRI: Health Impairments

Table of Contents

Discussion Lists

Celiac-diabetes is for people with Celiac Disease and Diabetes. To subscribe, send a message with a blank subject line to listserv@listserv.icors.org. In the body of the message type "subscribe celiac-diabetes Firstname Lastname".

Cfs-l is for those with Chronic Fatigue Syndrome. To subscribe, send a message with a blank subject line to listserv@listserv.icors.org. In the body of the message type "subscribe cfs-l Firstname Lastname".

Cfs-news provides medical news about CFS/CFIDS/ME To subscribe, send a message with a blank subject line to listserv@listserv.icors.org. In the body of the message type "subscribe cfs-news Firstname Lastname".

Chronic_Pain is open only to adults with chronic physical pain. Emphasis is on coping strategies and how to 'have a life.'

CML is a list for people interested in Chronic Myelogenous Leukemia.

Co-cure promotes cooperative efforts towards finding the cure for Chronic Fatigue Syndrome and the related Fibromyalgia.

Cshcn-l, Children with Special Health Care Needs E-mail Network, provides the opportunity to exchange ideas, identify exemplary programs, and dialogue about critical issues. To subscribe, send a blank message to cshcn-l-join@mchenet.ichp.edu.

Cystic-l is for exchanging information specific to Cystic Fibrosis. To subscribe, send a message with a blank subject line to listserv@peach.ease.lsoft.com. In the body of the message type "subscribe cystic-l Firstname Lastname".

Diabetic is for sharing concerns and experiences related to diabetes. To subscribe, send a message with a blank subject line to listserv@lehigh.edu. In the body of the message type "subscribe diabetic Firstname Lastname".

Ec-group is for discussions related to esophageal cancer.

Ectodermaldysplasia is for discussions related to Ectodermaldysplasia (ED).

Eczema concerns Eczema. To subscribe, send a blank message with a blank subject line to eczema-subscribe-request@listserv.icors.org.

Fibrom-l is a Fibromyalgia mailing list. To subscribe, send a message with a blank subject line to listserv@mitvma.mit.edu. In the body of the message type "subscribe fibrom-l Firstname Lastname".

Hunt-dis is for Huntington's Disease discussion.

Hyceph-l is for the discussion of Hydrocephalus. To subscribe, send a message with a blank subject line to listserv@po.missouri.edu. In the body of the message type "sub hyceph-l Firstname Lastname".

Leukemia is a Leukemia support group and information list for patients, caregivers, and professionals who are interested in Leukemia.

Liversupport-l is for those who suffer from, or those who know someone who suffers from, Primary Billary Cirrhosis (PBC), Primary Sclerosing Cholangitis, or other rare and chronic auto-immune liver diseases.

MaleBC is for patients, family, friends, physicians, researchers, and other interested persons to discuss clinical and non-clinical issues pertaining to male breast cancer. To subscribe, send a message with a blank subject line to listserv@listserv.acor.org. In the body of the message type "subscribe malebc Firstname Lastname".

Mpd-net is for patients, family, friends, doctors, and researchers concerned with Myeloproliferative Disorders. To subscribe, send a message with a blank subject line to listserv@listserv.acor.org. In the body of the message type "subscribe mpd-net Firstname Lastname".

Mpd-support-l, a Myeloprolific disease list, focuses on Polycythemia Vera, Essential Thrombocythemia, Agnogenic Myeloid Metaplasia, and Myelofibrosis. To subscribe, send a message with "subscribe" as the subject line to listserv@listserv.aol.com. In the body of the message type "subscribe mpd-support-l Firstname Lastname".

No-milk is a discussion list for those following a milk/casein/lactose-free diet and for people interested in milk-free issues. To subscribe, send a message with a blank subject line to listserv@maelstrom.stjohns.edu. In the body of the message type "subscribe no-milk Firstname Lastname".

Ovarian supports people who wish to discuss ovarian cancer and other ovarian disorders. To subscribe, send a message with a blank subject line to listserv@listserv.acor.org. In the body of the message type "subscribe ovarian Firstname Lastname".

P-atitis concerns Prostatitis. To subscribe, send a message with a blank subject line to listserv@maelstrom.stjohns.edu. In the body of the message type "subscribe p-atitis Firstname Lastname".

Pain-l is a chronic pain forum. To subscribe, send a message with a blank subject line to listserv@linux08.unm.ed. In the body of the message type "subscribe pain-l Firstname Lastname".

Parkinsons-l is a discussion list on Parkinson's Disease. To subscribe, send a message to listserv@listserv.iupui.ed. with the command "subscribe parkinsons-l Firstname Lastname".

Pituitary is a moderated discussion list for patients between the ages of 10-21 who have had, or have, a Pituitary Tumor or Disorder. To subscribe, send a message with a blank subject line to listserv@maelstrom.stjohns.edu. In the body of the message type "subscribe pituitary Firstname Lastname".

Rare-dis is for discussion of rare diseases. To subscribe, send a message with a blank subject line to listserv@maelstrom.stjohns.edu. In the body of the message type "subscribe rare-dis Firstname Lastname".

Rxderm-l is for discussion of skin disease. To subscribe, send a message with a blank subject line to listproc@ucdavis.edu. In the body of the message type "subscribe rxderm-l Firstname Lastname".

Sickkids is for kids with health impairments. To subscribe, send a message with a blank subject line to listserv@maelstrom.stjohns.edu. In the body of the message type "subscribe sickkids Firstname Lastname".

Teenswithdiabetes is for teens with diabetes. To subscribe, visit the website and enter your email address.

Thyroid is a discussion list for thyroid conditions and diseases. To subscribe, send a message with a blank subject line to listserv@maelstrom.stjohns.edu. In the body of the message type "subscribe thyroid Firstname Lastname".

Thyroid Discussion Group talks about all aspects of thyroid conditions and diseases. To subscribe, visit the website and enter your email address.

Vcfs is for individuals with the 22q11.2 deletion, as well as family members, friends, researchers, physicians, and other professionals. Discuss clinical, therapeutic, educational, advances, and other issues pertaining to VCFS, DiGeorge Syndrome, and other conditions associated with a 22q11.2 deletion. To subscribe, send a message with a blank subject line to listserv@maelstrom.stjohns.edu. In the body of the message type "subscribe vcfs Firstname Lastname".

Vitiligo is a discussion group for information and support of Vitiligo. To subscribe, send a message with a blank subject line to listserv@maelstrom.stjohns.edu. In the body of the message type "subscribe vitiligo Firstname Lastname".

Wilsons-list is for health care professionals, patients, families, friends, and others interested in Wilson's Disease--what it is, how to treat it, where to get help, who to contact for support and advice. To subscribe, send a message with a blank subject line to listserv@listserv.acsu.buffalo.edu. In the body of the message type "subscribe wilsons-list Firstname Lastname".

World Wide Web

Allernet
The Allernet website provides up-to-date information about allergy and asthma educational materials, Internet links, slides, and movies.

American Diabetes Association
Resources related to diabetes, including research, scientific findings, advocacy information, and health tips.

American Health Consultants (AHC)
Information about health products, services, newsletters, web products, and a variety of support methods.

American Heart Association (AHA)
Site dedicated to reducing disability and death from heart disease and stroke. Offers online information and publications.

Assistive Devices from Medline Plus
Information on assistive devices available for a variety of disabilities.

Ask the Dietitian
Questions and answers related to nutrition.

Association of Cancer Online Resources (ACOR)
Offers mailing lists, support, information, treatment options, clinical trials, and publications for anyone affected by cancer.

Birth Defect Research for Children, Inc.
Information about birth defects and resources for parents of children born with birth defects.

The Body, the Complete HIV/AIDS Resource
Information and resources related to diagnosis, treatment, and living with HIV and AIDS.

Celiac Disease and Gluten-free Diet Support Center
Provides resources and information for people on gluten-free diets.

Esophageal Cancer Support Group
A guide to esophageal cancer, with survivor stories, chat rooms, and message boards.

Go Ask Alice!
Health question and answer service produced by Alice!, Columbia University's Health Promotion Program.

HealthAnswers Education
HealthAnswers Education develops and delivers interactive, innovative training programs for the pharmaceutical and biotechnology industries, including compliant online learning.

Lupus Foundation of America (LFA)
Information on lupus, including research articles, continuing education, conferences, and mailing lists.

Mastocytosis Society
A non-profit organization dedicated to helping patients, caregivers, and medical personnel understand Mast Cell Disorders and the impact they have on patient's lives.

Mayo Clinic
Health tools regarding self-assessment and health calculation.

Mesothelioma Cancer Alliance
Information and support for individuals and families of individuals with mesothelioma.

Mesothelioma Cancer Center
Committed to providing the latest, up-to-date information with the hopes of spreading awareness about the dangers of asbestos exposure, including acupuncture and other alternative treatment methods for mesothelioma.

National Fibromyalgia Research Association (NFRA)
Information, diagnosis, and online resources related to fibromyalgia.

National Institutes of Health (NIH)
Provides health information, grant and funding opportunities, news, events, research training, and scientific resources.

The Max Foundation (TMF)
Foundation to improve the life of patients experiencing blood related cancers.

Thyroid Basics Center
Reviews basic knowledge of various thyroid conditions.

U.S. Department of Health and Human Services (HHS)
Information and resources on a wide variety of health and safety issues.