Cystic Fibrosis Center

Contents

• About the Center
• Clinical Programs - Center Affiliates
• Research Programs
• Cystic Fibrosis Research Center
• Cystic Fibrosis Therapeutics Development Network Coordinating Center
• Training Programs
• Related Links - Cystic Fibrosis Foundation
• Contact List

About the Center

The Cystic Fibrosis Center is accredited by the National Cystic Fibrosis Foundation, and follows the National Clinical Practice Guidelines for CF Care. We follow a team approach to care and all patients are seen by a dedicated team of pediatric pulmonologists, nurses, dietitians, social workers, and respiratory therapists.

Clinical Programs

For appointments, please call (206) 987-2024, option 1

Center Affiliate Programs

Adult Program
University of Washington Medical Center
1959 N.E. Pacific St. Seattle WA 98195
Director: Moira Aitken, MD
(206) 685-8434
CF Nurse: (206) 598-8446
Fax: (206) 598-2105
Appointments: (206) 598-4615

Tacoma Program
Mary Bridge Children's Health Center
311 S. "L" Street, Mailstop B1-OC
Tacoma WA 98405
Larry Larson, DO
David Ricker, MD
Co-Directors (253) 383-5777
Kristie Nolta, RN
(253) 403-3308
Fax: (253) 403-7921

Anchorage Program
Providence Medical Center
3260 Providence Drive, Suite 338
Box 196604
Anchorage AK 99519
Director: Dion Roberts, MD
4045 Lake Otis pkwy, Suite 209
Anchorage, AK 99508
(907) 561-5440
Fax: (907) 562-0412

Spokane Program
Deaconess Medical Center
800 W. 5th Ave.
Spokane, WA 99204
Director: Michael McCarthy, MD
(509) 455-6739
Karen Harrington, RN
Kendra Starkey, Clinic Coordinator
(509) 473-7300
Fax: (509) 473-2512

Research Programs

Research is an integral part of the CF Center with studies occuring side by side with clinical practice. In addition to our own CF database, many of our patients are enrolled in the National CF Registry and encouraged to participate in our own research studies as well as those sponsored by the Therapeutics Development Network.

Cystic Fibrosis Research Center

Research Staff Directory

Cystic Fibrosis Therapeutics Development Network Coordinating Center

Founded in 1998 by Dr. Bonnie Ramsey, the Cystic Fibrosis Therapeutics Development Network (TDN) is a national network of CF Care Centers that conduct clinical trials for CF research. The Coordinating Center located here in Seattle provides technical and administrative support for multi-center clinical trials.

Grants from the nonprofit Cystic Fibrosis Foundation Therapeutics, Inc. and the National Institutes of Health provide funding for the TDN. These grants expedite research and development of new therapies for patients afflicted with cystic fibrosis.

Training Programs

All residents and medical students at Children's have exposure to cystic fibrosis both in the outpatient clinics and inpatient wards.

Related Links - CFF Foundation

Cystic Fibrosis Foundation
www.cff.org
6931 Arlington Road
Bethesda, MD 20814
(800) 344-4823

Cystic Fibrosis Foundation - Washington Chapter
Dottie Moore, Executive Director
520 Pike Street, Suite 1075
Seattle, Washington 98101
(206) 282-4770
FAX: 283-8359
Email: washington@cff.org

The Cystic Fibrosis Foundation (CFF) was founded in 1955 to raise money for research to find a cure for cystic fibrosis (CF) and to improve the quality of life for the 30,000 children and young adults with the disease. The Washington Chapter of CFF raises money through the following annual events. Please call the foundation office if you would like to volunteer or become involved in any of the events.

Annual Fundraising Events - Fall 2007

Contact List

All pulmonary physicians at Children's Hospital see patients with CF. They are listed under Pulmonary Medicine.