Location: Wright Auditorium at Seattle Children’s Hospital
The documentary Rare is an honest portrayal of what it means to have a rare disease, the doctors studying rare diseases and offers an intimate window into the realm of clinical trials, the role of patient advocates and successes and disappointments of clinical research. Panel discussion led by Dr. Holly Tabor, Assistant Professor of Pediatrics, Bioethics, UW/Seattle Children’s; Dr. Bonnie Ramsey, Professor of Pediatrics, Director of the Center for Clinical and Translational Research, UW/Seattle Children’s Research Institute; Dr. Daniel Doherty, Associate Professor of Pediatrics, Developmental Medicine, UW/Seattle Children’s; Dean Suhr, President, MLD Foundation; Teryn Suhr, Executive Director, MLD Foundation; DeDe Van Quill, Director, Foundation for Nager & Miller Syndromes. RSVP to firstname.lastname@example.org. More information.
1959 NE Pacific St.
Seattle, WA 98195-6320
4800 Sand Point Way NE
Seattle, WA 98105